One already

Can you believe it? Sneaky B is already one year old. Doesn’t it seem like yesterday that I told you all I was preggers?  Seems like it to me. This year has flown by!

We had a little party for Sneaky B over the weekend. Just a few friends and family in the park. It was a lovely day and I have probably to many pictures to share. As you know I never do anything simple, it’s a party, why do simple right?

inviteblogThanks to my obsession with pinterest, I found way to many ideas for this  little party.  Like red wax cheese “carved” to look like ladybugs, porcupine watermelon (can’t believe I made this for many reasons) and awesome felt critter mask patterns from illistyle — So stinking cute! Any easy to make. (You can try them too, by following the link)

kandE

Simple cupcakes with vintage mushrooms. While baking the cupcakes I had a minor freak out moment… What was Sneaky B going to have for her cupcake?

snacks

With the Fpies and not many safe foods that could become any form of a cake, I had no idea! I was a sad about this. In fact it was the first time I have been sad about her Fpies dignosis.  I have not had a moment to metally process the fact that she has Fpies. This was the first…

cupcake

But then my dear friend Kayce came to mind. She and her husband own a company “Miss Roben’s Allergy Friendly Mixes” (they are working on creating a website, I will share once it’s up and running) that makes food mixes that do not include the top ten allergens. YES, maybe one of these would work! Since I have not yet tried any oils, I thought maybe I could use the Chocolate Fudge Frosting (which contains corn free powdered sugar!) mixed with coconut cream. Sneaky B hasn’t tried chocolate yet, but I thought let’s just bite the bullet and see what happens. I made a little “cupcake” of frosting and she loved it! I mean what’s not to love- this frosting is delicious. And happy day no reaction 🙂

mess

partyfunFor a moment while working on the party I thought why am I doing this? Maybe we should have waited till after we move (in 17 days!). She’s only one, she will not remember this party. But the reality is, we needed a day off.  We needed to spend time with family and friends. We needed to not think about packing and unpacking and packing and unpacking. It was delightful.

kisses

And now we are back to packing. In the next 17 days, we have a lot going on. Kiddo starts kindergarten. Hubby starts school too. We are moving. I am very excited to move; not so excited to pack, but excited to move! newsignature.jpg

 

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Drum roll please….

“Food Protein-Induced Enterocolitis Syndrome” otherwise known as Fpies. To put it very simply- a person with Fpies  can not process the proteins in certain, many or most foods.

Never heard of it?  I hadn’t.  Until a few years ago when one of my best friends Ashley (aka Magazine Mom, my sidekick) discovered her son has it. Poor little man. It was a crazy time in there lives. My heart ached for them.

This is what Sneaky B has. Fpies, although acute.

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Fpies kiddos- can they be any cuter?

Okay can I say what we are all thinking. What are the freaking chances of this happening?  Two friends with new babies a year and a half apart. Both have this random never heard of syndrome?  There has to be a mathematician out there who can tell me the odds. Maybe we need to hit up Vegas?

I do feel fortunate though. Lucky for me I have a friend I can go to for any questions I have about this Fpies. Lucky for us, we are go getters when it comes to our kiddos. Somehow I think we will be planning something big, yet again, for Fpies kids. Lucky Fpies. Lucky us!

I have a lot to learn still. LOTS.  She will probably grow out of it. She will most likely always be intolerant to corn which is her biggest trigger (using Fpies wordage:  “trigger” food that causes reaction). Now that we know she has Fpies, I feel good. Not knowing, for me, is the worst. Now we can look Fpies in the face and take it on. We accept this challenge. newsignature.jpg