“Food Protein-Induced Enterocolitis Syndrome” otherwise known as Fpies. To put it very simply- a person with Fpies can not process the proteins in certain, many or most foods.
Never heard of it? I hadn’t. Until a few years ago when one of my best friends Ashley (aka Magazine Mom, my sidekick) discovered her son has it. Poor little man. It was a crazy time in there lives. My heart ached for them.
This is what Sneaky B has. Fpies, although acute.
Okay can I say what we are all thinking. What are the freaking chances of this happening? Two friends with new babies a year and a half apart. Both have this random never heard of syndrome? There has to be a mathematician out there who can tell me the odds. Maybe we need to hit up Vegas?
I do feel fortunate though. Lucky for me I have a friend I can go to for any questions I have about this Fpies. Lucky for us, we are go getters when it comes to our kiddos. Somehow I think we will be planning something big, yet again, for Fpies kids. Lucky Fpies. Lucky us!
I have a lot to learn still. LOTS. She will probably grow out of it. She will most likely always be intolerant to corn which is her biggest trigger (using Fpies wordage: “trigger” food that causes reaction). Now that we know she has Fpies, I feel good. Not knowing, for me, is the worst. Now we can look Fpies in the face and take it on. We accept this challenge.
4 thoughts on “Drum roll please….”
I am still in shock. I had a feeling, but was worried I wanted to diagnose all “food intolerant” children with the one syndrome I knew something about. Sad for you and sneaky B but know you are doing great, and with our knowledge together…these kids will thrive. Xoxo
I know I still am in shock too. It’s just crazy. I haven’t gotten sad or mad yet, but I am sure that’s coming. I truly am grateful for your knowledge and friendship! xoxox
My son was severely allergic to all poultry – chicken, turkey, etc.- most of his life. We could not have chicken in the house. My family cooked a small ham, in addition to the turkey, at Thanksgiving so that he could participate. I had to carry Benadryl with me at all times because we never knew when there would be cross contamination at restaurants. However, around 21 years old he was at a BBQ and tried a bit of chicken because “it smelled and looked so good.” He waited and had no reaction. Somehow he grew out of his allergy and now eats chicken with no problems.
thank you for sharing your story with me. How wonderful your son has outgrown his allergy!